Naturally Type 1 Facebook Page

Hello everyone.  Well, I have not been on here in forever.  We are currently trying to figure out how to navigate the teen years and keep the blood sugars down.  Even with insulin, it’s been horrible the past few months.  I am going to try some new suggestions (Goldenseal being one) to help.  I am scared.  We are going back to the doctor next week.  He is very traditional and very strict.  I appreciate the fact that he really wants her numbers in a normal range, however, I don’t care for the bedside manner.  Anyway, prayers are much appreciated. 

That said, I would like to invite everyone to come join the Facebook page called Naturally Type 1.  Sally Roman and her husband update it frequently and have so many tips, tricks and recipes that they share.  I just have not been able to keep up with this page.  Partly because of the business of raising two teen girls and also because I feel like we need to go back to the drawing board and get my daughter’s numbers in a normal/healthy range again. 

Like I said, prayers are appreciated.  Lily is currently doing a fast, but it’s still not helping.  Worried, confused, etc.  Prayers please!! 

Hope to see you all on the Facebook page soon.

Jayne

Grain Free Flat Bread Recipe

Grain Free Flat Bread Recipe

Hey everyone!  I hope your Summers have all been spectacular so far!  Ours has been busy.  I removed the last post regarding Summer Camp for Lily because she did not end up going.  Not only because of the food issue, but also because she had other activities she wanted to do this Summer.  So we cancelled on the camp.  However, since I did mention the recipes, I do plan on posting some that I was going to make, just to share with all of you.  The first one is a flat bread that we make at home.  Sometimes we have it with hummus, you can use it for pizza or oil and vinegar (Italian style!).  Of course, you can put whatever you’d like on it.  Also, you can add whatever flavors you want to the base….we usually make the flavors I’m about to share, but you can also make it sweet with cinnamon and stevia….to taste.  

Here’s a link to the bread.  I don’t measure, so sometimes I use more psyllium (a binder that is used in lieu of egg) and add more spices depending on what I’m craving.  Play around with the recipe and you’ll see.  Don’t make it too wet.  When you press it out before baking, you’ll find that it looks kind of crumbly, but when it bakes, it will stick together quite nicely.  Here’s the link.  Comments welcome and more to come!!!

http://byebyegluten.blogspot.com/2012/02/easy-grain-free-flatbread-20.html

ENJOY!!!

Crazy Week So Far

Okay, so this week has been a bit crazy where Diabetes is concerned.  Lily had an appointment at a clinic this week.  Although we go to Vanderbilt, it’s not convenient and it’s VERY expensive for those without insurance (like us)…so I found a local clinic that will do her bloodwork at a very low price.  It’s right around the corner which is a bonus.  

First of all, the doctor we met with asked about her last A1C, which is 7.4.  He started telling her that for her long term health, she needed to get it down.  I agree, and we are working on that.  I explained to him that we just started using baking soda for the dawn effect.  He shook his head, looked at me like I was completely wacko, and said “what?”…so I explained again, and he stated that it was not within his realm of diabetes education that baking soda has any effect on blood sugars.  I explained that every time she took the baking soda before bed, she woke up below 200….but when she didn’t, she went over 200.  This seemed to irk him and he got a bit curt with me.  He told me he was not there to debate theories with me and that we should move on with the exam.  Okay.  Whatever.  Lily was a little upset and I told her it was fine.  I explained to her later that it was not that he was trying to be rude to me personally, but that he just didn’t know a whole lot about how to control blood sugars.  I also explained that when people like doctors (who have much more education than myself) are challenged, they tend to react in a defensive manner and usually want to avoid a subject that may expose their ignorance on any given subject.  

Moving on.  He began to explain to Lily what may await her if she didn’t get her blood sugars in control.  This made her cry and he felt like a heel.  He suggested we get her eyes checked, which we are going to do this month.  He is going to run blood panels and check her kidney function, etc…which is really all I wanted from him in the first place.  The good thing?  My daughter is learning that there will be opposition in this world…it’s important to handle it correctly.

So moving on to the school nurse.  Lily told her that she went to a new doctor.  The nurse informed her that she shouldn’t go to a bunch of different doctors.  First of all, I’m not sure why she feels the need to put in her two cents.  Second of all, she does not live my life or raise my child, and really has no place to speak of what we are doing.  My daughter is going to her endo, seeing her D.O. and going to a local clinic for bloodwork.  But no matter what I do, it seems someone is interested in interjecting their negative opinions…so I now expect it and blow it off.  I simply do not care.  The nurse went on to tell Lily that her A1C was fine at 7.4…she even read it in a book.  Mind you, this is the same nurse who told Lily that she didn’t have to subtract fiber from carbs before taking a shot (something Vanderbilt recommends and that I also found in a book called “Think Like a Pancreas”.  This is the same nurse that tells my daughter that she should eat first, then take her shot…something her Vandy doctor disagrees with.  She’s 15, not three.  Then she told Lily that if she started to take a shot before she eats, she needs doctor’s orders.  What the heck?  Okay…whatever.   So Lily goes on to tell her that this summer, she plans on eating raw and juicing.  This irritated the nurse apparently who made the snide remark “don’t call me when you end up sick in the hospital”….Oh joy, more opposition.  I just told Lily not to worry…that everyone has their own opinion and that she has to do what is right for her, not just what the nurse believes to be true.  What bugs me most is that I know if I brought in a cake or donuts for my daughter, this nurse would not say one negative thing about it.  What ever happened to nutrition and long term health??  Oh well…I’m not gonna fight it.  I am lucky enough to have a kid who has her head on straight and knows how to take care of herself.  She is not perfect, but she is trying to take control of this stupid diabetes thing, and I am here to support her 100%.  We just have to move forward and know that the proof is in the numbers.

Just thought I’d share, and also say thank you to you all for giving me so much wisdom and support!

Jayne

Strangeness

Okay, since most of you will probably only ever communicate with me here on this blog, I want to tell you now how much your support means to me.  Thanks to those of you who have taken the time to read my rantings and not judge what our family has been through.  It’s so easy to hear or read part of a story and assume the rest.  However, this forum has allowed me the opportunity to meet some amazing people.  You have taught me more than I’ve taught you.  You have given us hope and support and love and I can’t ever tell you how much it means to me and my family.

Now, I must address an issue that seems to never resolve itself…..Strangeness.  

I am a strange ‘girl’.  I go against the grain.  I swim upstream against the current.  I don’t believe everything I read, see or hear.  I have to know, I have to try, I have to test the boundaries.  So all my life, I’ve been a little different.  I see things through a different set of eyes I suppose.  I don’t know why, but that’s just me.  So what I’m getting at here is that while I’m used to feeling strange and being told I’m strange or different, I’ve come to the conclusion that what most people call ‘strange’ is sometimes exactly what is beneficial for most people…but they choose the easy path.  To me, the easy path is ‘strange’.  

I can’t tell you how many times I’ve seen people in my family complain about health issues after years of abusing their bodies with toxic foods and habits.  This to me is in fact ‘strange’.  To top it off, when I try to share my views on diet or health or any of it, my opinions are met with borderline hostility, as though I were telling someone to jump off a bridge!  

Shouldn’t I be concerned about the foods that my family eats?  Shouldn’t I be teaching my kids to put good foods into their bodies….not only that…shouldn’t I teach them WHY they should eat good foods?  How those foods break down and how their bodies use those foods for fuel and to rebuild cells?  Shouldn’t I?  Or should I just go with the flow, give up and stock the pantry with donuts and soda?  Should I feed chemically laden grains (treated with known mitochondrial toxins) to my kids who have mitochondrial diseases already?  Should I promote things as food that actually have the nutritional value of a rock?  

I am not sure why healthy foods provoke people to anger.  Perhaps it’s guilt?  Perhaps just laziness?  

Let me assure you, I do not care what you choose to feed your child.  But I care what my own child eats.  So those who disagree or have a problem with my blog, might I suggest you continue to eat how you want, listen to whom you chose to listen to, and live your lives how you want to, and let me do the same?  I’m all for choices, aren’t you?  Thank God we live in a country where I can feed my child how I choose to, and so can you.  I’m not judging, I’m just living my chosen path…the one that seems right to me.

So the anger I hear from those who disagree has caught me off guard lately…it’s actually left me feeling a bit, dare I say, strange.  But the more I learn about diet and health, the more I realize that the strangest thing I’ve ever encountered is opposition to what’s right and good.  I don’t understand the anger.  If you don’t want to eat healthy foods, that’s cool.  You can do what you want…but don’t push your beliefs on me.  And do not complain when you reap the rewards of your actions.  Chose your path and live it…and let me live mine.

Ignorance

Dear Everyone,

I’m definitely writing this out of frustration.  First of all, I want to be clear that I’ve never claimed to cure my daughter’s Type 1 Diabetes.  Those of you who know me, or have read my entire blog, know that I started this to document our journey through this disease.  Lily is in fact, on insulin.  Secondly, we do struggle, we go through what all Type 1′s go through from time to time, it’s not easy, it’s not fun, it’s not what we ever wanted for our daughter, but it’s our reality.  If I could change it, I would.  But if I can make it easier for her body to work correctly, I will do what it takes.  

Despite all my efforts to share and post what we’ve gone through, I continue to get nasty letters from people chastizing me for claiming to have a cure for Type 1.  Others (like the most recent comment) tell me how ignorant I am and that my daughter must be a Type 2 Diabetic.  

As far as I know, my daughter is Type 1.  Unless someone knows more than the doctors at Vanderbilt, I don’t think they have any right to comment on my daughter’s diagnosis.  Her antibodies are present for Type 1.  She is insulin dependant, but still makes her own from time to time.  She’s not fat, and as far as I know, her diabetes is not reversable….at least, not yet.  However, this does not mean that I will give up hope.  I am doing the best I can do.  I’m not here to sell a cure, or to sell ANYTHING.  I don’t make money from this website and have no alterior motives other than to share and get support from others who can tell me what they are doing to help their own Type 1.  As far as I’m concerned, we are all in this together and for anyone to get upset about my daughter’s eating habits is completely obsurd in my opinion.  I would be more apt to believe that one should get upset over a child gulping down a nasty donut than one who prefers to eat veggies and fruits for the most part.  

Sorry for the rant here, I just wanted to say that I am not promoting a cure.  I’m hoping for one.  I’m not trying to sell anything, I’m trying to help my kid.  So thanks to those who have given me support here.  To the rest, I hope you will read EVERYTHING before you judge me or my family.

Love you all,

God Bless

Jayne

Baking Soda

Hey all,

Just a quick blurb here to let you know what we’ve been up to.  First of all, Lily is still diabetic…okay, you already knew that right?  Secondly, we have been trying out a new “thing” I had heard about a while back via Sally Roman.  On her website, she talks about her sons taking baking soda (in drinks) before bed time.  This balances the pH and also helps diabetics stop the ‘dawn phenomenon’.  So we thought we’d give it a go.  But since the taste of baking soda, no matter how diluted, makes us sick (literally), I went to the health food store and picked up some empty capsules and made my own pills.  I got size 0 capsules and I give her two to three before bed (depending on how high her BG is at that time).  The other night, Lily ate dinner and forgot to take her insulin (Whoops!)….when we got home to check, her BG was 400.  After having a heart attack myself, then wiping her tears of frustration away, she took her novolog, lantus, and three capsules of baking soda.  She woke up at 126!  Since then, we’ve been taking the pills in the morning, at dinner and bed time.  It helps so much.  I’m really looking forward to seeing her next A1C.  Her last one was 7.4….too high for my liking, but the same as the one before it, so atleast it hasn’t gone up.  

I’m going to see if I can get the pills online instead of making my own.  Any suggestions?  

Well, aside from that, life is pretty hectic.  Between homeschooling one teen and one in highschool, and a husband who works all the time, I feel like I need to sleep for a week!  Anyway, just praying for Summer to come soon. 

I hope you all are doing well!  Talk to you soon!!

Jayne