Monthly Archives: March 2010

STUFF N Nonsense…:)

Lily just checked her BG and it’s 89!  That’s after just eating some raw cookies made with agave, walnuts, cocoa and coconut oil….not too shabby.  She’s been sick all day….stuffy nose and whatnot, so she’s home from school resting.  We checked her  ketones and they were “small”…so a little higher than usual, but still not bad.  No fever and we’re keeping her well hydrated.  She’s actually in the kitchen now eating some almond butter and making turkey bacon!  Such a lovely combination.

On another subject, has anyone here ever heard of or used Nopal? 

http://www.ncbi.nlm.nih.gov/pubmed/1307994

My cousin told me that my aunt used to keep it on hand, but my aunt died a few years ago, so my cousin wasn’t sure really how it affected her blood sugars.  However, it sounds interesting and I would love to know more about it if anyone can chime in:)

Also, Dr. Bernstein will be online tomorrow night…I am going to try and be online to see what he has to say.  Has anyone submitted a question to him?  I would like to know about GAD antibodies and how or if they can be reversed or go into remission???  Lily is positive for the antibody and this concerns me.  I am having a hard time with antibodies/autoantibodies and how it all works.  I’ve been reading about how IVIG can possibly help, but not sure if it’s possible to actually get rid of the little buggers altogether.  Any help on this would also be much appreciated.

Well, I think that’s it.  You all have been sending me great info…keep it coming.  I will post links to my site if you send me research articles.  I appreciate it.  Hope you are all well.

Jayne

Recipe-”Fried” Chicken Salad

Hey guys,

Thought I’d share the recipe for the salad I just made today!  Hope you enjoy.

Harvestland Chiken Breast tenderloins (all natural) about 1 lb.

about a cup of almond meal

2 organic eggs

coconut or extra virgin olive oil

sea salt

spices to taste (I used garlic pepper)

Dip each tenderloin into mixed raw egg and roll in mixture of almond meal and spices.  Preheat oil in pan on stove and cook tenderloins until browned and cooked all the way through (about 10 minutes or so)….You can also bake them instead (sans oil)….

Cut tenderloins in slices and serve over fresh spinich or romaine lettuce.  I topped my salad with pecans and poppyseed dressing.  I would have added cranberries, but I ran out!!:(  May also be good with a bit of goat cheese? 

Either way, it was yummy….I like the texture of the crust much better than say, corn flakes:)  It was really tender and a little bit crunchy…Try it and let me know whatcha think!

I will be giving some to Lily when she wakes up (sick today)….She’s not usually a fan of chicken, so we’ll see what she has to say about it.

Enjoy!!!

Going Against the Grain

There is a lot to be said for those who chose to go against the grain of popular thoughts and beliefs.  It’s not an easy road.  It takes courage and stamina and lots of hope in what can’t always be seen.  I guess “Faith” would be a good word.  I have to hand it to the moms out there who are reading this.  Diabetes is a struggle every day.  It’s a worry every day.  But out children are so worth the fight, the bumps, the bruises, the worry and the heartache….and of course…the triumphs!!! 

That said, I hope you don’t mind if I vent a little here, and ask, why exactly it is that when I mention anything about my daughter on a diabetes chat board, I get one (or all) of the following responses EVERY TIME:

1.  It’s the honeymoon, enjoy it while it lasts…

2. She was probably misdiagnosed.

3. You’re lying and giving other diabetics false hope.

or (my least favorite)

4. Someone inevidably cuts and pastes a link to the story where the parents denied their child insulin and the child died….followed by veiled threats of reporting such parents to social services (refering to me).

I honestly don’t know why I try to tell people our story sometimes.  I feel like maybe, just maybe, someone will get some use out of something here…and I guess that’s what makes me want to keep going and talking to others.  But it really bothers me that there are so, so many in the diabetic community who are so unsupportive of anyone who is not the status quo.  It’s almost like a whole group of people are just saying what they’ve been taught to say and are so negative when there is anything positive happening with anyone else.  I truly hope my daughter is never like some of these people I’ve dealt with lately.  

How do you all deal with negative people?  Do you defend your position or let it go?  How does it make you feel?  Any suggestions (besides the obvious…don’t go on these “support” boards to begin with…lol)???

In the end, it just motivates me to learn more and be more diligent about finding the answers…Oh, and did I mention, the last group I dealt with is called “Find a Cure for Juvenile Diabetes” on Facebook…http://www.facebook.com/group.php?gid=2204811909

My advice to those who are truly wanting a “cure” is, keep your eyes open for all possibilities…what works for some may not work for everyone, but even if it works for some, isn’t that worth something????

I’ll leave you with this quote….

Oh, you should never, never doubt what nobody is sure about…Willy Wonka

Thanks to the other moms who are in this fight:)  I’ve learned so much from you in such a short time.  I am truly grateful for all your help and suggestions…OH…and true support!!!

xoxo…

Jayne

Suggestion

I have learned so much from all the moms who have contacted me here, that I have a suggestion….ready???  I suggest you also start blogs charting your progress.  You can link them to mine and we can reach more people with our “message” so to speak.  I think it may really help a lot more people that way, and you all can have something to look back on as well and for your children to participate in if they choose.  Just sayin’:)